Communications & Engagement Lead

This assignment will be fulfilled at 30 hours per week across Monday–Thursday. The successful applicant will be required to visit the charity's Twickenham office at a minimum of once per week.

Fowler’s Syndrome UK (FSUK) is the only charity in the world dedicated to women (and afab) with Fowler’s Syndrome or Chronic Idiopathic Urinary Retention; a life-changing and poorly understood bladder condition that causes full or partial urinary retention.

The CEO is excited to welcome a proactive, purpose-driven, and resourceful Communications and Engagement Lead to join their small and purposeful team and support the next phase in their journey.

In this multi-faceted role, you will ensure that women affected by Fowler’s Syndrome, clinicians, researchers, and the wider public are intimately connected to the charity’s work.You will enable smoother pathways for women seeking support and for healthcare professionals looking to access educational resource, while also leading on a range of communications activities and awareness campaigns.

You will take responsibility for coordinating and facilitating online patient groups, supporting in-person events, and helping to manage FSUK’s Patient Council. Tasked with overseeing the development of content such as patient resources, you will also advance wider engagement across projects and research programmes and ensure that communications, whether via newsletters, socia...